Tuesday, May 19, 2009
Tuesday, February 3, 2009
Thursday, December 18, 2008
Eli had an abdominal ultrasound last week. He was so cute- his little body laying on this huge hospital bed. He didn't seem to mind having the goop put on him and the tech laughed out loud when she moved the scanner on his tummy and he smiled wide at her. Watch out ladies! LOL
We have half of the results back from the scan and they are so good! His clotting and hemorrhaging is resolved and his veins are patent (which means good flow). The Renal clinic was sad and happy to see us go. We no longer will be under their care, but we have made some special friends there for sure.
Next stop: Adrenal glands! We are praying for miraculous healing and we will meet soon with Endocrinology to go over the results. His labs this week were gorgeous and the most stable they have ever been.
Eli is chunking up, big time! His weight at 3 months is 13 pounds 7 ounces. Yikes! We think the steroids may be the major contributor, but he is half the weight of Ava our 3 year old. ha ha
We are all excited for Christmas!
Wednesday, December 3, 2008
Thursday, November 27, 2008
Elijah means "whose God is Jehova". I didn't understand why he was meant to have that name until now and even still the message seems to be more poignant than ever. God is Lord- He is
Lord over the earth and the heavens and everything in it! Why should I fear? Even as a little child I have sang "Jesus loves me, when I am weak He is strong!"
I want to encourage you on this most thankful of days- no matter where you are or what you feel weak about right now, God's grace is sufficient for you!
2 Corinthians 12:9-10, ”but he said to me, “My grace is sufficient for you, for power is made perfect in weakness.” So, I will boast all the more gladly of my weaknesses, so that the power of Christ may dwell in me. Therefore I am content with weaknesses, insults, hardships, persecutions, and calamities for the sake of Christ; for whenever I am weak, then I am strong.”
We are thankful for you!
Sunday, November 2, 2008
We have an appointment this week with endochrinology- so hopefully we will get some more answers, but I imagine the ultrasound will be the difinitive on his adrenals.
There was definitely more drama this week. (we just can't get away!) The refill for Eli's steroid was different than the original refill we ordered from Walgreens pharmacy. Children's pharmacy read us the original order and looks like Walgreens goofed up his prescription. What does this mean you ask? It means we have been overdosing our newborn son for almost 20 days! The Walgreens prescription had us giving Eli twice as much steroid than needed and we have no idea what this could be doing to his growth and development. Needless to say, we believe this is absolutely unacceptable and are taking this up with the chain's management. We are watching Eli closely as we drop his steroid use in half now. As if we don't have enough on our plate already, Geez!
On a lighter note, Jim is convinced he is starting to smile (I still think it's gas LOL) and he coos now and then when he is content. Torrey and Ava love to hold and rock him. Ava thinks her name is "Big sister" and tells everybody when they ask her name.
I am not the only one losing sleep around here:
Sunday, October 19, 2008
Wednesday, October 8, 2008
Thank you all for your continued prayer and support. Ilde definitely needs prayer and a extra boost of energy. She has been taking the blunt of the late nights since I am back at work. I smell a spa day coming on:)
Sunday, October 5, 2008
Ilde and I hope and pray that his labs come back normal. Not too many more drugs they can give this little guy. I will let you all know the result as soon as I get it.
Saturday, October 4, 2008
Friday, October 3, 2008
After this crazy event they decided to admit Eli to the ICU to get him stabilized and see why his labs keep getting out of whack. So that is where we are currently and are playing the waiting game. Eli is doing better, however it looks like he is going to need an additional steroid to fix this potassium and salt issue. The reason that the potassium level is so important is if it gets to high like his was it will potentially mess with your heart.
Please keep us in your prayers. This has been a tough go thinking we are safe and at home then finding out we are back where we started a week ago. Tough on the ol'e emotions. Ilde and I are doing better today but are a little skaken up.
We will let you know how tomorrow goes.
Ilde and Jim
Tuesday, September 30, 2008
Sunday, September 28, 2008
Mom and Dad are trying to catch up on some sleep today and get ready for the craziness of this next week. The days will be filled with getting the girls ready for school and frequent visits to the Dr's this week. Jim is returning to work on Monday and feels torn to be in two places at one time.
We will continue to keep this blog updated with the adventures of Eli and the Krazy Kooks!!! We will try to have a video and some pics posted later this week.
Saturday, September 27, 2008
We will be keeping a close eye on Eli for the next year and will be a frequent visitor to Children's Hospital, looks like we have to meet with his Dr. around 3 times a week. WOW!!! Glad gas is cheap....oh wait it's almost 4 bucks a gallon. Oh well we are so very thankful our little boy is alive and doing well. Ilde is getting better and better each day. Jim has had no sleep for the last few days for the fact he is staying with Eli 24/7 Good bonding time for them both. I'm sure Ilde will get her fair share of sleepless nights coming up.
This whole event would have been just about impossible without the selfless help of our family and friends watching our kids, dog, cleaning our house, buying us numerous meals and loving on us. You all ROCK!! Amazing how light this burden was to carry when everyone lifted together. Starting to get sappy so I will sign off for now. We will keep this blog updated just so you can keep an eye on Eli with us.
Thursday, September 25, 2008
We had a up and down day today. This morning early we were given the hope of being discharged, pending a good ultra sound scan, and a successful test of his adrino glands. Eli had a procedure early this morning that tricks his adrino glands into functioning. Your adrino glands work when your body goes into a stress scenario, example: Getting sick or injury ect. Your adrino glands release a steroid that bolsters your body against sickness and gives you extra strength to fight that sort of stuff off. Well to get to the point...His adrino glands are not turning on when the body ask's them. Sooooo they doc's are giving him a steroid to see if they can sort of jump start the system. That means we are gonna be here for a few more days at least.
In the morning we are meeting the Dr. to go over the results of his ultra-sound scan to see if his kidneys are getting better and to see if there is any more clots. Please pray for a clear scan!
The staff of Children's Hospital and their facility make this stressful time halfway enjoyable. Top notch facility's and great staff makes this place hard to complain about. Jim has been down there 24/7 since the start of this and feels a little guilty how nice he has it. We have loads of awesome family and friends that make this chapter in our life not a nightmare but a time where we saw how much you all mean to us. We love the email's and the posts.
I will try to give a update around noon tomorrow.
Wednesday, September 24, 2008
We had a pretty uneventful day and that is a good thing. Lots of coffee and hanging out at the Hospital. Ilde brought our girls down this morning. Torrey was able to go in for a limited time to see her baby brother however Ava is too young.
Spoke with a few specialist today about his glands and their ability to function properly. They are going to do a test in the morning to determine if he can combat colds and fevers ect. Still has some blood in his urine, but is eating well. Tomorrow should shed a bit more light into what the next steps are. We hope and pray that he stays the course. Look around noon for a update.
The news about Eli is improving and improving!!! He does not have any tumors on his kidneys, Praise the Lord!!!! However he still has some blood clotting on his adrenal glands which are on top of each kidney. He still has some blood in his urine but the Dr's are optimistic about his recovery and we are in a wait and see mode for the next few days. The million dollar question is, if he is making these clots genetically or were they caused from the trauma of birth. We all hope this was a one time occurrence.
He is doing great, I got to hold him this morning and we talked about what football games that are coming up this weekend. Eli didn't think the Titans could hold off the Vikings this week. I told him that a strong defence could put the Vikings in check. Then he cried over it all, or maybe he was hungry:)
Ilde is doing OK. She is trying to do to much to fast and is paying the price for it this morning.
She technically should still be at the hospital from having a C-section but nothing was gonna hold her back from holding her little boy. Wheel chair and all she came rolling into children's hospital to see her sweet boy yesterday. Lots of tears and smiles.
Overall baby and Mama are doing great and are on track for a recovery. We are still not completely out of the woods on Eli but we are believing God for a full recovery. Thank you all for your prayers and email's txt's phone calls ect. Glad we have unlimited plans on our iPhones.
This whole situation reveals how we have such great community among all of our friends and family's.