Thursday, December 18, 2008


Eli had an abdominal ultrasound last week. He was so cute- his little body laying on this huge hospital bed. He didn't seem to mind having the goop put on him and the tech laughed out loud when she moved the scanner on his tummy and he smiled wide at her. Watch out ladies! LOL

We have half of the results back from the scan and they are so good! His clotting and hemorrhaging is resolved and his veins are patent (which means good flow). The Renal clinic was sad and happy to see us go. We no longer will be under their care, but we have made some special friends there for sure.

Next stop: Adrenal glands! We are praying for miraculous healing and we will meet soon with Endocrinology to go over the results. His labs this week were gorgeous and the most stable they have ever been.

Eli is chunking up, big time! His weight at 3 months is 13 pounds 7 ounces. Yikes! We think the steroids may be the major contributor, but he is half the weight of Ava our 3 year old. ha ha

We are all excited for Christmas!

Wednesday, December 3, 2008

Little lab baby

had to have 2 this week because our favorite phlebotomist was out of town and we had a new gal who thought I was crazy for telling her how to draw his blood. There is a specific way Eli's blood must be drawn or the sample will hemolize and the lab deems it unusable. I tried to be really sweet and not use that"I'm telling you how to do your job" tone of voice. LOL But she kinda' gave me a weird look and dismissed me as another kooky parent. (I am kooky but that is beside the point).

I went home and a few hours later got a phone call that the sample had hemolized! Ugh! So back again today for another blood draw. I think Eli is getting wise to all the visits, because he gets wide eyed in the waiting room. A nurse came up to him today and was sweet talking him- he gave her one big smile and then shoved out his lower lip and let out a wail!

Besides all the run around, his labs came back today and they are terrific! He had a cold this week so we have been giving him 3x his normal steroids- it's called stress dosing and he seems to be fine. I think we are more freaked out than anything. ;)

Walgreens contacted us this week and gave us a formal apology. It's a start. LOL